mesothelioma-Another Day of Back Manipulation- JUSTICEWORLD

- Hi friends, At this time sharing entitled , I have provided a complete article about mesothelioma

Title : mesothelioma-Another Day of Back Manipulation- JUSTICEWORLD
post : mesothelioma-Another Day of Back Manipulation- JUSTICEWORLD

What a week we are having from hot weather to brutally cold days then muggy nights.

 

Today was my visit by to the physiotherapist, I asked him to be gentle with me as it seems this nerve problem is doing all kinds of weird and unwonderful things.  Who could believe that even passing water could become so painful, no stinging but a dull pain in the muscles.

 

He reiterated that the damage will take months to correct and that the brain is trying to deal with the different signals, hence the pain travels to different places.  Please I begged, I just want to be normal!  To think this all started with some strange spasm in my left leg when I lifted it a certain height or went to sit or cross or my legs.

 

Ever since surgery I have stayed away from massages on my back, allowing only along my shoulders even though I would love a great back rub.  Now I wonder if I had allowed a back massage would I be having all this trouble now?  Although by the time he has pressed on my poor left side, where all my thickening resides I wonder if I am doing more damage than good.

 

We take so much for granted, I just seem to go from one pain event to another, maybe if I turn my thoughts around and say give me more pain it might just disappear!  Now that would be nice.

 

Many meso warriors around the world are facing rounds of chemotherapy or trials for new drugs, it is frightening now to think how many people actually have this terrible cancer and yet we are no further forward than we were 8 years ago with a different chemotherapy treatment.  If asbestos is a natural fibre then somewhere near its mining area most be something that can destroy it.  I wish there was a dog leaf we could eat that killed the tumours that develop in our bodies.

 

I am also still upset at the fact I am still waiting for my results, by the time I get them it will be 2 months to the next scan, (if that is actually done on time) not much time for celebrating all is ok, then today I received another letter with a different appointment date for my oncologist.  I'm not sure whether the one in early June has been cancelled and the one end of June is now replacing it which will make it nearly 9 weeks after the scan.  Another job tomorrow to ring and see what is going on.

 

Lexi came through her surgery, thankfully.  Although we were worried as when we rang at 1 pm she was still under her blanket and not moving much.  They found two tumours and removed both together with a small lump removed from her rear right ankle and one from the top of her left rear paw.  Then they looked at her pile and removed that, only to end up having to stitch inside her anus as the pile was much deeper than anticipated.  The poor dog is not a happy girl, she looks at hubby adoringly and gives me daggers.  Maybe because I'm the one that gives her the nasty tasting meds!

 

That's it from here, hope we all live to fight another year, we are driven by the will to live and long may that continue.

What a week we are having from hot weather to brutally cold days then muggy nights.

 

Today was my visit by to the physiotherapist, I asked him to be gentle with me as it seems this nerve problem is doing all kinds of weird and unwonderful things.  Who could believe that even passing water could become so painful, no stinging but a dull pain in the muscles.

 

He reiterated that the damage will take months to correct and that the brain is trying to deal with the different signals, hence the pain travels to different places.  Please I begged, I just want to be normal!  To think this all started with some strange spasm in my left leg when I lifted it a certain height or went to sit or cross or my legs.

 

Ever since surgery I have stayed away from massages on my back, allowing only along my shoulders even though I would love a great back rub.  Now I wonder if I had allowed a back massage would I be having all this trouble now?  Although by the time he has pressed on my poor left side, where all my thickening resides I wonder if I am doing more damage than good.

 

We take so much for granted, I just seem to go from one pain event to another, maybe if I turn my thoughts around and say give me more pain it might just disappear!  Now that would be nice.

 

Many meso warriors around the world are facing rounds of chemotherapy or trials for new drugs, it is frightening now to think how many people actually have this terrible cancer and yet we are no further forward than we were 8 years ago with a different chemotherapy treatment.  If asbestos is a natural fibre then somewhere near its mining area most be something that can destroy it.  I wish there was a dog leaf we could eat that killed the tumours that develop in our bodies.

 

I am also still upset at the fact I am still waiting for my results, by the time I get them it will be 2 months to the next scan, (if that is actually done on time) not much time for celebrating all is ok, then today I received another letter with a different appointment date for my oncologist.  I'm not sure whether the one in early June has been cancelled and the one end of June is now replacing it which will make it nearly 9 weeks after the scan.  Another job tomorrow to ring and see what is going on.

 

Lexi came through her surgery, thankfully.  Although we were worried as when we rang at 1 pm she was still under her blanket and not moving much.  They found two tumours and removed both together with a small lump removed from her rear right ankle and one from the top of her left rear paw.  Then they looked at her pile and removed that, only to end up having to stitch inside her anus as the pile was much deeper than anticipated.  The poor dog is not a happy girl, she looks at hubby adoringly and gives me daggers.  Maybe because I'm the one that gives her the nasty tasting meds!

 

That's it from here, hope we all live to fight another year, we are driven by the will to live and long may that continue.

What a week we are having from hot weather to brutally cold days then muggy nights.

 

Today was my visit by to the physiotherapist, I asked him to be gentle with me as it seems this nerve problem is doing all kinds of weird and unwonderful things.  Who could believe that even passing water could become so painful, no stinging but a dull pain in the muscles.

 

He reiterated that the damage will take months to correct and that the brain is trying to deal with the different signals, hence the pain travels to different places.  Please I begged, I just want to be normal!  To think this all started with some strange spasm in my left leg when I lifted it a certain height or went to sit or cross or my legs.

 

Ever since surgery I have stayed away from massages on my back, allowing only along my shoulders even though I would love a great back rub.  Now I wonder if I had allowed a back massage would I be having all this trouble now?  Although by the time he has pressed on my poor left side, where all my thickening resides I wonder if I am doing more damage than good.

 

We take so much for granted, I just seem to go from one pain event to another, maybe if I turn my thoughts around and say give me more pain it might just disappear!  Now that would be nice.

 

Many meso warriors around the world are facing rounds of chemotherapy or trials for new drugs, it is frightening now to think how many people actually have this terrible cancer and yet we are no further forward than we were 8 years ago with a different chemotherapy treatment.  If asbestos is a natural fibre then somewhere near its mining area most be something that can destroy it.  I wish there was a dog leaf we could eat that killed the tumours that develop in our bodies.

 

I am also still upset at the fact I am still waiting for my results, by the time I get them it will be 2 months to the next scan, (if that is actually done on time) not much time for celebrating all is ok, then today I received another letter with a different appointment date for my oncologist.  I'm not sure whether the one in early June has been cancelled and the one end of June is now replacing it which will make it nearly 9 weeks after the scan.  Another job tomorrow to ring and see what is going on.

 

Lexi came through her surgery, thankfully.  Although we were worried as when we rang at 1 pm she was still under her blanket and not moving much.  They found two tumours and removed both together with a small lump removed from her rear right ankle and one from the top of her left rear paw.  Then they looked at her pile and removed that, only to end up having to stitch inside her anus as the pile was much deeper than anticipated.  The poor dog is not a happy girl, she looks at hubby adoringly and gives me daggers.  Maybe because I'm the one that gives her the nasty tasting meds!

 

That's it from here, hope we all live to fight another year, we are driven by the will to live and long may that continue.

mesothelioma-Heat and Blue Skies- JUSTICEWORLD

- Hi friends, At this time sharing entitled , I have provided a complete article about mesothelioma

Title : mesothelioma-Heat and Blue Skies- JUSTICEWORLD
post : mesothelioma-Heat and Blue Skies- JUSTICEWORLD

Yesterday morning we woke to sunshine flooding the bedroom, although outside was still a little cool, but Yes I thought, Sunshine.

 

I had overslept so my body ached badly, especially my back and leg, together with my normal torso feeling of the body being compacted.  But a couple of coffee's later and of course checking what is happening in the world I was ready to face the day.

 

Hubby was sat outside, he came in with the papers but a look on his face that told me something was wrong, Lexi has another growth.  We both had a quick shower then straight to the vets, yes it will probably be cancerous, the last one was.  The only worry is it could have spread to her lungs, she is panting a lot but then she is nearly 12 but nevertheless the lump will be removed.  We had also found a small nodule on the back of her foot, we didn't think this serious but our vet told us these were things that caused dogs to lose a leg.  He will take a biopsy of this one too.  One bit of good news the pile that is giving her grief may be able to be removed, so at least she will get some benefit from the operation.

 

We came home and took them both over the woods, the sun was warmish, not too hot for Lexi.  Both her and I are like little old women, in the case of Lexi I guess she is.  We both took the walk slowly around the field and through the woods.  The grass is really growing now but was quite wet, the ponds still flooded so heavy boots required to keep my toes dry. 

We headed home for lunch then an afternoon in the garden, hubby cutting he lawn, me proof reading The Vial.  This is the time I wish I had an editor or agent, as I have two other books I have started, one another in the series of Bear Boy and another about my own journey through life and meso.  Not sure whether I would publish the latter though.

As we sat in the heat of the afternoon sun we had an ice pop each, Bear sat in front of me the entire time so I had to share.

I love Ice Lollies!

But cold on his stomach isn't a good mixture, so after eating half my ice pop he consequently threw up, thankfully not over me.

Hubby brought out some crisps, again he begged, drooling like it was going out of fashion for a Newfoundland.  My clean clothes are in the wash!

More Please!

If he could have put his nose in the bag he would have done.

Well it looks like nice weather again today.  Why is it though when its hot I feel like I should be doing house work or sorting drawers out, I think when I was living at home sunny days always made for more housework or a good clean out.

 

I was supposed to be in the Sunday Sun today regarding the release of The DreamWeaver's Choice and why the Tissue bank is so important and of course MKMRF.  I have done two interviews for this paper previously.  As the paper man hasn't been as yet I don't know whether it has been included.

 

Well that's all from the Sunny North East of England, no doubt we will be a couple of degrees cooler than those down South but at least for once we have some sun!

Yesterday morning we woke to sunshine flooding the bedroom, although outside was still a little cool, but Yes I thought, Sunshine.

 

I had overslept so my body ached badly, especially my back and leg, together with my normal torso feeling of the body being compacted.  But a couple of coffee's later and of course checking what is happening in the world I was ready to face the day.

 

Hubby was sat outside, he came in with the papers but a look on his face that told me something was wrong, Lexi has another growth.  We both had a quick shower then straight to the vets, yes it will probably be cancerous, the last one was.  The only worry is it could have spread to her lungs, she is panting a lot but then she is nearly 12 but nevertheless the lump will be removed.  We had also found a small nodule on the back of her foot, we didn't think this serious but our vet told us these were things that caused dogs to lose a leg.  He will take a biopsy of this one too.  One bit of good news the pile that is giving her grief may be able to be removed, so at least she will get some benefit from the operation.

 

We came home and took them both over the woods, the sun was warmish, not too hot for Lexi.  Both her and I are like little old women, in the case of Lexi I guess she is.  We both took the walk slowly around the field and through the woods.  The grass is really growing now but was quite wet, the ponds still flooded so heavy boots required to keep my toes dry. 

We headed home for lunch then an afternoon in the garden, hubby cutting he lawn, me proof reading The Vial.  This is the time I wish I had an editor or agent, as I have two other books I have started, one another in the series of Bear Boy and another about my own journey through life and meso.  Not sure whether I would publish the latter though.

As we sat in the heat of the afternoon sun we had an ice pop each, Bear sat in front of me the entire time so I had to share.

I love Ice Lollies!

But cold on his stomach isn't a good mixture, so after eating half my ice pop he consequently threw up, thankfully not over me.

Hubby brought out some crisps, again he begged, drooling like it was going out of fashion for a Newfoundland.  My clean clothes are in the wash!

More Please!

If he could have put his nose in the bag he would have done.

Well it looks like nice weather again today.  Why is it though when its hot I feel like I should be doing house work or sorting drawers out, I think when I was living at home sunny days always made for more housework or a good clean out.

 

I was supposed to be in the Sunday Sun today regarding the release of The DreamWeaver's Choice and why the Tissue bank is so important and of course MKMRF.  I have done two interviews for this paper previously.  As the paper man hasn't been as yet I don't know whether it has been included.

 

Well that's all from the Sunny North East of England, no doubt we will be a couple of degrees cooler than those down South but at least for once we have some sun!

Yesterday morning we woke to sunshine flooding the bedroom, although outside was still a little cool, but Yes I thought, Sunshine.

 

I had overslept so my body ached badly, especially my back and leg, together with my normal torso feeling of the body being compacted.  But a couple of coffee's later and of course checking what is happening in the world I was ready to face the day.

 

Hubby was sat outside, he came in with the papers but a look on his face that told me something was wrong, Lexi has another growth.  We both had a quick shower then straight to the vets, yes it will probably be cancerous, the last one was.  The only worry is it could have spread to her lungs, she is panting a lot but then she is nearly 12 but nevertheless the lump will be removed.  We had also found a small nodule on the back of her foot, we didn't think this serious but our vet told us these were things that caused dogs to lose a leg.  He will take a biopsy of this one too.  One bit of good news the pile that is giving her grief may be able to be removed, so at least she will get some benefit from the operation.

 

We came home and took them both over the woods, the sun was warmish, not too hot for Lexi.  Both her and I are like little old women, in the case of Lexi I guess she is.  We both took the walk slowly around the field and through the woods.  The grass is really growing now but was quite wet, the ponds still flooded so heavy boots required to keep my toes dry. 

We headed home for lunch then an afternoon in the garden, hubby cutting he lawn, me proof reading The Vial.  This is the time I wish I had an editor or agent, as I have two other books I have started, one another in the series of Bear Boy and another about my own journey through life and meso.  Not sure whether I would publish the latter though.

As we sat in the heat of the afternoon sun we had an ice pop each, Bear sat in front of me the entire time so I had to share.

I love Ice Lollies!

But cold on his stomach isn't a good mixture, so after eating half my ice pop he consequently threw up, thankfully not over me.

Hubby brought out some crisps, again he begged, drooling like it was going out of fashion for a Newfoundland.  My clean clothes are in the wash!

More Please!

If he could have put his nose in the bag he would have done.

Well it looks like nice weather again today.  Why is it though when its hot I feel like I should be doing house work or sorting drawers out, I think when I was living at home sunny days always made for more housework or a good clean out.

 

I was supposed to be in the Sunday Sun today regarding the release of The DreamWeaver's Choice and why the Tissue bank is so important and of course MKMRF.  I have done two interviews for this paper previously.  As the paper man hasn't been as yet I don't know whether it has been included.

 

Well that's all from the Sunny North East of England, no doubt we will be a couple of degrees cooler than those down South but at least for once we have some sun!

mesothelioma-Poor hubby- JUSTICEWORLD

- Hi friends, At this time sharing entitled , I have provided a complete article about mesothelioma

Title : mesothelioma-Poor hubby- JUSTICEWORLD
post : mesothelioma-Poor hubby- JUSTICEWORLD

Having a rotten time with my leg\back\heal\shoulders and head I feel so bad for hubby, he started with a raging sore throat over the weekend finally going to the doctors on Tuesday to get a strong dose of antibiotics.

 

He looks so sad, unable to swallow and drink, but why is it men seem to look more sad and unable to do things than us women.  I hate the fact he has had to run after me while I couldn't walk but I don't think my demure (for want of a better word) was as sad or is as sad as his.

 

Men are certainly wired differently to us, hence why men deal with mesothelioma so differently than the growing number of women who have it.

 

I have managed to go to work this week, although yesterday I could have stayed home.  I went to the physio on Monday and I swear what the one on Thursday put right she has put wrong again, I just want this whole problem to go away but it does seem two steps forward and one step back. 

 

One good thing about hubby being ill he won't move from in front of the TV so he waited patiently for the article on Mesothelioma being discussed in the House of Commons, after some two hours it was brought up for less than 3 seconds, only to be passed to the House of Lords.  Well I am pleased he watched it and not I!

 

It seems the government are looking to put compensation in place for those who haven't an company they can seek compensation from.  I was hoping the debate was going to be on spending more money for much needed research.

 

I have heard from a gentleman in Germany who is looking at the following treatment for a family member,  although another USA product it seems like the trials will go international.

http://www.asbestos.com/news/2013/01/25/verastem-inc-to-begin-developing-novel-mesothelioma-drug/

I am not sure whether this is something that is being developed in Wales under a different pharmaceutical company.

 

Guess that's all from me today, another day in the office but my do I wish I could put my feet up.  At least I can walk again.

 

Having a rotten time with my leg\back\heal\shoulders and head I feel so bad for hubby, he started with a raging sore throat over the weekend finally going to the doctors on Tuesday to get a strong dose of antibiotics.

 

He looks so sad, unable to swallow and drink, but why is it men seem to look more sad and unable to do things than us women.  I hate the fact he has had to run after me while I couldn't walk but I don't think my demure (for want of a better word) was as sad or is as sad as his.

 

Men are certainly wired differently to us, hence why men deal with mesothelioma so differently than the growing number of women who have it.

 

I have managed to go to work this week, although yesterday I could have stayed home.  I went to the physio on Monday and I swear what the one on Thursday put right she has put wrong again, I just want this whole problem to go away but it does seem two steps forward and one step back. 

 

One good thing about hubby being ill he won't move from in front of the TV so he waited patiently for the article on Mesothelioma being discussed in the House of Commons, after some two hours it was brought up for less than 3 seconds, only to be passed to the House of Lords.  Well I am pleased he watched it and not I!

 

It seems the government are looking to put compensation in place for those who haven't an company they can seek compensation from.  I was hoping the debate was going to be on spending more money for much needed research.

 

I have heard from a gentleman in Germany who is looking at the following treatment for a family member,  although another USA product it seems like the trials will go international.

http://www.asbestos.com/news/2013/01/25/verastem-inc-to-begin-developing-novel-mesothelioma-drug/

I am not sure whether this is something that is being developed in Wales under a different pharmaceutical company.

 

Guess that's all from me today, another day in the office but my do I wish I could put my feet up.  At least I can walk again.

 

Having a rotten time with my leg\back\heal\shoulders and head I feel so bad for hubby, he started with a raging sore throat over the weekend finally going to the doctors on Tuesday to get a strong dose of antibiotics.

 

He looks so sad, unable to swallow and drink, but why is it men seem to look more sad and unable to do things than us women.  I hate the fact he has had to run after me while I couldn't walk but I don't think my demure (for want of a better word) was as sad or is as sad as his.

 

Men are certainly wired differently to us, hence why men deal with mesothelioma so differently than the growing number of women who have it.

 

I have managed to go to work this week, although yesterday I could have stayed home.  I went to the physio on Monday and I swear what the one on Thursday put right she has put wrong again, I just want this whole problem to go away but it does seem two steps forward and one step back. 

 

One good thing about hubby being ill he won't move from in front of the TV so he waited patiently for the article on Mesothelioma being discussed in the House of Commons, after some two hours it was brought up for less than 3 seconds, only to be passed to the House of Lords.  Well I am pleased he watched it and not I!

 

It seems the government are looking to put compensation in place for those who haven't an company they can seek compensation from.  I was hoping the debate was going to be on spending more money for much needed research.

 

I have heard from a gentleman in Germany who is looking at the following treatment for a family member,  although another USA product it seems like the trials will go international.

http://www.asbestos.com/news/2013/01/25/verastem-inc-to-begin-developing-novel-mesothelioma-drug/

I am not sure whether this is something that is being developed in Wales under a different pharmaceutical company.

 

Guess that's all from me today, another day in the office but my do I wish I could put my feet up.  At least I can walk again.

 

mesothelioma-Is it winter already?- JUSTICEWORLD

- Hi friends, At this time sharing entitled , I have provided a complete article about mesothelioma

Title : mesothelioma-Is it winter already?- JUSTICEWORLD
post : mesothelioma-Is it winter already?- JUSTICEWORLD

Last night I did something I haven't done for a long time, drank and drank again.  It started with making my Maltese style lasagne, it had red wine in, so with dinner I asked hubby did he want something to drink he said Bacardi and Coke so I thought why not, I'll join him.  That was at 7 pm, we went to bed at 1.15, I haven't been that late up for so many years I can't even remember.  I've been worried about hubby recently, feeling that something was going on with him and he isn't talking about it.  Last night we talked, boy did we talk.

 

I said some time back he didn't want me to have the latest scan and to wait to have my scans till after the summer months but I didn't want to.  He feels that if I know there is growth it will spoil my holidays whereas I told him I need a time marker, if it is growing we can monitor it's rate of growth much easier than just waiting till September and finding out it has grown and to what extent.  Not that I believe the mesothelioma is going to grow. 

 

Having had mixed meso in 04 I have been extremely lucky and to be honest if the meso does return I would rather monitor it again like I did last year and hold back on treatment till after Summer, but we need to know the rate of growth, so scans are important. 

 

It's back to the what if's again, if the meso was to grow do and if we leave the meso to grow for too long will chemo be as affective or if we dive straight in for treatment are we using up all our options.  This cancer hasn't any choices in the chemo regime and our bodies become used to the poison, results each time being less than the first time the chemical was introduced to the system.

 

I think we came to that understanding again of enough talked about for the time being on mesothelioma, lets enjoy the summer and worry about meso in Autumn.  Easier said than done because I know both of us think of it everyday or deal with something related to it. 

 

The other problem about drinking last night is all the good work of keeping my foot in the right position, Achilles heel pain had gone by last night, I have undone some of the work!  My bum and thigh are tender together with my back.  I was thinking of cancelling the Monday appointment with the physio and wait to see the Doctor's physio on Thursday, now am not so sure, although he seems to have done the best treatment but then it could be the use of both that has worked so well! 

 

We were due to go to a point to point today but having a bad foot I had to turn the tickets down, so glad I did, looking at the rain still coming down.  The BBC certainly got the forecast right last night, it did start at 11 and is still pouring down now.  Wonder what I can do today, I imagine both of us will be on that sofa at some point catching up on sleep!

Last night I did something I haven't done for a long time, drank and drank again.  It started with making my Maltese style lasagne, it had red wine in, so with dinner I asked hubby did he want something to drink he said Bacardi and Coke so I thought why not, I'll join him.  That was at 7 pm, we went to bed at 1.15, I haven't been that late up for so many years I can't even remember.  I've been worried about hubby recently, feeling that something was going on with him and he isn't talking about it.  Last night we talked, boy did we talk.

 

I said some time back he didn't want me to have the latest scan and to wait to have my scans till after the summer months but I didn't want to.  He feels that if I know there is growth it will spoil my holidays whereas I told him I need a time marker, if it is growing we can monitor it's rate of growth much easier than just waiting till September and finding out it has grown and to what extent.  Not that I believe the mesothelioma is going to grow. 

 

Having had mixed meso in 04 I have been extremely lucky and to be honest if the meso does return I would rather monitor it again like I did last year and hold back on treatment till after Summer, but we need to know the rate of growth, so scans are important. 

 

It's back to the what if's again, if the meso was to grow do and if we leave the meso to grow for too long will chemo be as affective or if we dive straight in for treatment are we using up all our options.  This cancer hasn't any choices in the chemo regime and our bodies become used to the poison, results each time being less than the first time the chemical was introduced to the system.

 

I think we came to that understanding again of enough talked about for the time being on mesothelioma, lets enjoy the summer and worry about meso in Autumn.  Easier said than done because I know both of us think of it everyday or deal with something related to it. 

 

The other problem about drinking last night is all the good work of keeping my foot in the right position, Achilles heel pain had gone by last night, I have undone some of the work!  My bum and thigh are tender together with my back.  I was thinking of cancelling the Monday appointment with the physio and wait to see the Doctor's physio on Thursday, now am not so sure, although he seems to have done the best treatment but then it could be the use of both that has worked so well! 

 

We were due to go to a point to point today but having a bad foot I had to turn the tickets down, so glad I did, looking at the rain still coming down.  The BBC certainly got the forecast right last night, it did start at 11 and is still pouring down now.  Wonder what I can do today, I imagine both of us will be on that sofa at some point catching up on sleep!

Last night I did something I haven't done for a long time, drank and drank again.  It started with making my Maltese style lasagne, it had red wine in, so with dinner I asked hubby did he want something to drink he said Bacardi and Coke so I thought why not, I'll join him.  That was at 7 pm, we went to bed at 1.15, I haven't been that late up for so many years I can't even remember.  I've been worried about hubby recently, feeling that something was going on with him and he isn't talking about it.  Last night we talked, boy did we talk.

 

I said some time back he didn't want me to have the latest scan and to wait to have my scans till after the summer months but I didn't want to.  He feels that if I know there is growth it will spoil my holidays whereas I told him I need a time marker, if it is growing we can monitor it's rate of growth much easier than just waiting till September and finding out it has grown and to what extent.  Not that I believe the mesothelioma is going to grow. 

 

Having had mixed meso in 04 I have been extremely lucky and to be honest if the meso does return I would rather monitor it again like I did last year and hold back on treatment till after Summer, but we need to know the rate of growth, so scans are important. 

 

It's back to the what if's again, if the meso was to grow do and if we leave the meso to grow for too long will chemo be as affective or if we dive straight in for treatment are we using up all our options.  This cancer hasn't any choices in the chemo regime and our bodies become used to the poison, results each time being less than the first time the chemical was introduced to the system.

 

I think we came to that understanding again of enough talked about for the time being on mesothelioma, lets enjoy the summer and worry about meso in Autumn.  Easier said than done because I know both of us think of it everyday or deal with something related to it. 

 

The other problem about drinking last night is all the good work of keeping my foot in the right position, Achilles heel pain had gone by last night, I have undone some of the work!  My bum and thigh are tender together with my back.  I was thinking of cancelling the Monday appointment with the physio and wait to see the Doctor's physio on Thursday, now am not so sure, although he seems to have done the best treatment but then it could be the use of both that has worked so well! 

 

We were due to go to a point to point today but having a bad foot I had to turn the tickets down, so glad I did, looking at the rain still coming down.  The BBC certainly got the forecast right last night, it did start at 11 and is still pouring down now.  Wonder what I can do today, I imagine both of us will be on that sofa at some point catching up on sleep!

mesothelioma-Pains and more pains- JUSTICEWORLD

- Hi friends, At this time sharing entitled , I have provided a complete article about mesothelioma

Title : mesothelioma-Pains and more pains- JUSTICEWORLD
post : mesothelioma-Pains and more pains- JUSTICEWORLD

I feel like a little spoilt brat at the moment because I am going to whinge about pain, my leg has got no better and now what feels like my Achilles heel is injured, which because of the way I am having to walk is making my leg hurt even more, now not only the top of my thigh but my bum, back, shin and of course the heel itself are either throbbing or aching or feel like I have a Chinese burn going on inside.

 

I really just can't stand any more pain, my ribs on the left feel inflamed, Monday I felt like I was coming down with cold and felt miserable, taking night nurse and diazepam because my body was going into overdrive.  How do people cope, I just don't know anymore.  I know I am fed up of pain, one seems to fade into the background as another appears, its a long road that never ends.

 

At present my chest feels like it has been in a vice on the left side, on a morning that takes a good hour before I feel like I have room to sit straight, but then it aches.  I don't want to start taking more morphine I just want to understand why pain is increasing, after all my last scan said I was inactive, ok haven't results for this, but am hoping for the same.

 

Maybe if it was a one off that we do go through, everyone has aches and pains sometimes in their lives, but I just feel I have been dealt the must unluckiest hand given.  I know that sounds self pitying but today that's how I feel.  I feel bad for hubby too, he sits there and can't do anything, I feel like he is having to become a servant for my needs and that isn't right.

 

Even my bum cheek hurts now, and as always its the left, my fear's are growing, I had the worst nightmare last night, probably brought on by my fear that is racing round my head, what if the meso has got to my spine?  If it is resting on a nerve in my back maybe I can get a nerve block for it but what if it isn't.  I have considered it not being connected but then why my left and why where the bottom of lung is where all the nerves are gathered in one big block. 

 

I so want to be pain free, to live and not be sat here feeling so sorry for myself.  What makes it worse is I know many meso warriors are going through much worse but even that thought isn't stopping me feeling like this.  Dear God please take the pain away.  Even sitting is painful.

 

Just had to get this off my chest because my mind is buzzing with meso.  Somewhere inside I know that a spot of nerve pain can be caused by no other reason than a stretch but its been weeks since it started, 4 physio appointments later and I am worse.

 

So my mood is that of the weather, grey and miserable.

I feel like a little spoilt brat at the moment because I am going to whinge about pain, my leg has got no better and now what feels like my Achilles heel is injured, which because of the way I am having to walk is making my leg hurt even more, now not only the top of my thigh but my bum, back, shin and of course the heel itself are either throbbing or aching or feel like I have a Chinese burn going on inside.

 

I really just can't stand any more pain, my ribs on the left feel inflamed, Monday I felt like I was coming down with cold and felt miserable, taking night nurse and diazepam because my body was going into overdrive.  How do people cope, I just don't know anymore.  I know I am fed up of pain, one seems to fade into the background as another appears, its a long road that never ends.

 

At present my chest feels like it has been in a vice on the left side, on a morning that takes a good hour before I feel like I have room to sit straight, but then it aches.  I don't want to start taking more morphine I just want to understand why pain is increasing, after all my last scan said I was inactive, ok haven't results for this, but am hoping for the same.

 

Maybe if it was a one off that we do go through, everyone has aches and pains sometimes in their lives, but I just feel I have been dealt the must unluckiest hand given.  I know that sounds self pitying but today that's how I feel.  I feel bad for hubby too, he sits there and can't do anything, I feel like he is having to become a servant for my needs and that isn't right.

 

Even my bum cheek hurts now, and as always its the left, my fear's are growing, I had the worst nightmare last night, probably brought on by my fear that is racing round my head, what if the meso has got to my spine?  If it is resting on a nerve in my back maybe I can get a nerve block for it but what if it isn't.  I have considered it not being connected but then why my left and why where the bottom of lung is where all the nerves are gathered in one big block. 

 

I so want to be pain free, to live and not be sat here feeling so sorry for myself.  What makes it worse is I know many meso warriors are going through much worse but even that thought isn't stopping me feeling like this.  Dear God please take the pain away.  Even sitting is painful.

 

Just had to get this off my chest because my mind is buzzing with meso.  Somewhere inside I know that a spot of nerve pain can be caused by no other reason than a stretch but its been weeks since it started, 4 physio appointments later and I am worse.

 

So my mood is that of the weather, grey and miserable.

I feel like a little spoilt brat at the moment because I am going to whinge about pain, my leg has got no better and now what feels like my Achilles heel is injured, which because of the way I am having to walk is making my leg hurt even more, now not only the top of my thigh but my bum, back, shin and of course the heel itself are either throbbing or aching or feel like I have a Chinese burn going on inside.

 

I really just can't stand any more pain, my ribs on the left feel inflamed, Monday I felt like I was coming down with cold and felt miserable, taking night nurse and diazepam because my body was going into overdrive.  How do people cope, I just don't know anymore.  I know I am fed up of pain, one seems to fade into the background as another appears, its a long road that never ends.

 

At present my chest feels like it has been in a vice on the left side, on a morning that takes a good hour before I feel like I have room to sit straight, but then it aches.  I don't want to start taking more morphine I just want to understand why pain is increasing, after all my last scan said I was inactive, ok haven't results for this, but am hoping for the same.

 

Maybe if it was a one off that we do go through, everyone has aches and pains sometimes in their lives, but I just feel I have been dealt the must unluckiest hand given.  I know that sounds self pitying but today that's how I feel.  I feel bad for hubby too, he sits there and can't do anything, I feel like he is having to become a servant for my needs and that isn't right.

 

Even my bum cheek hurts now, and as always its the left, my fear's are growing, I had the worst nightmare last night, probably brought on by my fear that is racing round my head, what if the meso has got to my spine?  If it is resting on a nerve in my back maybe I can get a nerve block for it but what if it isn't.  I have considered it not being connected but then why my left and why where the bottom of lung is where all the nerves are gathered in one big block. 

 

I so want to be pain free, to live and not be sat here feeling so sorry for myself.  What makes it worse is I know many meso warriors are going through much worse but even that thought isn't stopping me feeling like this.  Dear God please take the pain away.  Even sitting is painful.

 

Just had to get this off my chest because my mind is buzzing with meso.  Somewhere inside I know that a spot of nerve pain can be caused by no other reason than a stretch but its been weeks since it started, 4 physio appointments later and I am worse.

 

So my mood is that of the weather, grey and miserable.

mesothelioma-Problems with life- JUSTICEWORLD

- Hi friends, At this time sharing entitled , I have provided a complete article about mesothelioma

Title : mesothelioma-Problems with life- JUSTICEWORLD
post : mesothelioma-Problems with life- JUSTICEWORLD

Life with mesothelioma is never an easy road to travel.  The community of meso warriors are all involved in one form of treatment or another.  Decisions to be made on surgery or chemotherapy, then those who are doing well and haven't had treatment for years against those who just can't get the meso into a status of inactive.  The one thing all of us have in common is that we just don't know what is going to happen next.

 

A friend of mine went through surgery a year ago, although she too had a rough journey, her lung didn't want to stick back to the ribs either and spent quite a long time in hospital with a tube in, (thankfully I came home with mine), but she is having problems with her breathing.  The CT Scan isn't showing anything unusual but she feels herself that something is wrong.  Her weight has dropped, which I told her would be expected.  The weight loss doesn't seem to happen at the time of surgery but quite a few months to a year later, those lbs start falling.  This is caused by trauma to the body, it takes the body a while before it picks up on this, the brain deals with the surgery first, then the pain etc but sometime along the line our body then goes "hey something happened to me" and hence we have weight loss.  Had better write here this is my opinion only and gathered by only a few people I know who have had surgery including myself.  But I am worried about her, and asked her to ask for a second opinion.  CT Scan's can only show growth if it is over 3mm or the cut has happened in the right place, (the time the CT Scan takes it's snapshot).  It only takes 1mm of meso to make us uncomfortable, I should know as I felt mine return in the beginning of 2010 and then my USA radiologist noticed it in the April, it was a lot bigger in the December when my UK radiologist mentioned it.

 

Then you hear of other friends who are trying different treatments or have catheters in place to drain the fluid that gathers in the pleura space.  Mesothelioma makes pockets and it can be quite difficult for the catheters to do their work as the fluid can't drain the individual pockets.  This in turn makes breathing hard again. 

 

Many are currently going through chemo, the loss of hair sometimes can be distressing, my hair is fine and so when I brushed my hair or ran my hand through it and had loads of hair drop out it worried me, on our treatment we don't go bald but shed quite a lot.

 

Then the worry of if the chemotherapy will actually work, we know that Alimta (Pemetrexed) doesn't work for everyone.  One of the Warriors will be using a different chemo this time (4th line) and I for on am eager to see if it works.  Although my other friend has just finished his 4th line with a 3 chemical infusion and so far is inactive but didn't get the shrinkage which we all hope for.

 

I guess I am slightly worried, my scan was last Tuesday and although my oncologist is away I am hoping my gp will give me the results.  I have had some changes, I have to hope this is something to do with age and not the meso.  My worry is still this leg, what if the meso has grown and is now resting on another nerve?  Also a few new tighter pains in those left ribs, but that could be to do with my fat belly, see we all live in hope when we have this cancer.

 

It's Monday already and I have a busy week ahead, having been out of the office for nearly 3 weeks, I did get in a couple of half days so tonight I will probably come home and crash on the sofa.  I am having trouble with my eyes at the moment, they get tired looking at the screen but if I put on glasses I can't see as they are for distance, I guess I need an appointment, will be quite hard I guess to match my eyes as I don't need anything to read things on my desk or in my hand only the screen.

 

Have a good week everyone, don't forget to drop in on my warrior friends blogs and catch what they are up to.

Life with mesothelioma is never an easy road to travel.  The community of meso warriors are all involved in one form of treatment or another.  Decisions to be made on surgery or chemotherapy, then those who are doing well and haven't had treatment for years against those who just can't get the meso into a status of inactive.  The one thing all of us have in common is that we just don't know what is going to happen next.

 

A friend of mine went through surgery a year ago, although she too had a rough journey, her lung didn't want to stick back to the ribs either and spent quite a long time in hospital with a tube in, (thankfully I came home with mine), but she is having problems with her breathing.  The CT Scan isn't showing anything unusual but she feels herself that something is wrong.  Her weight has dropped, which I told her would be expected.  The weight loss doesn't seem to happen at the time of surgery but quite a few months to a year later, those lbs start falling.  This is caused by trauma to the body, it takes the body a while before it picks up on this, the brain deals with the surgery first, then the pain etc but sometime along the line our body then goes "hey something happened to me" and hence we have weight loss.  Had better write here this is my opinion only and gathered by only a few people I know who have had surgery including myself.  But I am worried about her, and asked her to ask for a second opinion.  CT Scan's can only show growth if it is over 3mm or the cut has happened in the right place, (the time the CT Scan takes it's snapshot).  It only takes 1mm of meso to make us uncomfortable, I should know as I felt mine return in the beginning of 2010 and then my USA radiologist noticed it in the April, it was a lot bigger in the December when my UK radiologist mentioned it.

 

Then you hear of other friends who are trying different treatments or have catheters in place to drain the fluid that gathers in the pleura space.  Mesothelioma makes pockets and it can be quite difficult for the catheters to do their work as the fluid can't drain the individual pockets.  This in turn makes breathing hard again. 

 

Many are currently going through chemo, the loss of hair sometimes can be distressing, my hair is fine and so when I brushed my hair or ran my hand through it and had loads of hair drop out it worried me, on our treatment we don't go bald but shed quite a lot.

 

Then the worry of if the chemotherapy will actually work, we know that Alimta (Pemetrexed) doesn't work for everyone.  One of the Warriors will be using a different chemo this time (4th line) and I for on am eager to see if it works.  Although my other friend has just finished his 4th line with a 3 chemical infusion and so far is inactive but didn't get the shrinkage which we all hope for.

 

I guess I am slightly worried, my scan was last Tuesday and although my oncologist is away I am hoping my gp will give me the results.  I have had some changes, I have to hope this is something to do with age and not the meso.  My worry is still this leg, what if the meso has grown and is now resting on another nerve?  Also a few new tighter pains in those left ribs, but that could be to do with my fat belly, see we all live in hope when we have this cancer.

 

It's Monday already and I have a busy week ahead, having been out of the office for nearly 3 weeks, I did get in a couple of half days so tonight I will probably come home and crash on the sofa.  I am having trouble with my eyes at the moment, they get tired looking at the screen but if I put on glasses I can't see as they are for distance, I guess I need an appointment, will be quite hard I guess to match my eyes as I don't need anything to read things on my desk or in my hand only the screen.

 

Have a good week everyone, don't forget to drop in on my warrior friends blogs and catch what they are up to.

Life with mesothelioma is never an easy road to travel.  The community of meso warriors are all involved in one form of treatment or another.  Decisions to be made on surgery or chemotherapy, then those who are doing well and haven't had treatment for years against those who just can't get the meso into a status of inactive.  The one thing all of us have in common is that we just don't know what is going to happen next.

 

A friend of mine went through surgery a year ago, although she too had a rough journey, her lung didn't want to stick back to the ribs either and spent quite a long time in hospital with a tube in, (thankfully I came home with mine), but she is having problems with her breathing.  The CT Scan isn't showing anything unusual but she feels herself that something is wrong.  Her weight has dropped, which I told her would be expected.  The weight loss doesn't seem to happen at the time of surgery but quite a few months to a year later, those lbs start falling.  This is caused by trauma to the body, it takes the body a while before it picks up on this, the brain deals with the surgery first, then the pain etc but sometime along the line our body then goes "hey something happened to me" and hence we have weight loss.  Had better write here this is my opinion only and gathered by only a few people I know who have had surgery including myself.  But I am worried about her, and asked her to ask for a second opinion.  CT Scan's can only show growth if it is over 3mm or the cut has happened in the right place, (the time the CT Scan takes it's snapshot).  It only takes 1mm of meso to make us uncomfortable, I should know as I felt mine return in the beginning of 2010 and then my USA radiologist noticed it in the April, it was a lot bigger in the December when my UK radiologist mentioned it.

 

Then you hear of other friends who are trying different treatments or have catheters in place to drain the fluid that gathers in the pleura space.  Mesothelioma makes pockets and it can be quite difficult for the catheters to do their work as the fluid can't drain the individual pockets.  This in turn makes breathing hard again. 

 

Many are currently going through chemo, the loss of hair sometimes can be distressing, my hair is fine and so when I brushed my hair or ran my hand through it and had loads of hair drop out it worried me, on our treatment we don't go bald but shed quite a lot.

 

Then the worry of if the chemotherapy will actually work, we know that Alimta (Pemetrexed) doesn't work for everyone.  One of the Warriors will be using a different chemo this time (4th line) and I for on am eager to see if it works.  Although my other friend has just finished his 4th line with a 3 chemical infusion and so far is inactive but didn't get the shrinkage which we all hope for.

 

I guess I am slightly worried, my scan was last Tuesday and although my oncologist is away I am hoping my gp will give me the results.  I have had some changes, I have to hope this is something to do with age and not the meso.  My worry is still this leg, what if the meso has grown and is now resting on another nerve?  Also a few new tighter pains in those left ribs, but that could be to do with my fat belly, see we all live in hope when we have this cancer.

 

It's Monday already and I have a busy week ahead, having been out of the office for nearly 3 weeks, I did get in a couple of half days so tonight I will probably come home and crash on the sofa.  I am having trouble with my eyes at the moment, they get tired looking at the screen but if I put on glasses I can't see as they are for distance, I guess I need an appointment, will be quite hard I guess to match my eyes as I don't need anything to read things on my desk or in my hand only the screen.

 

Have a good week everyone, don't forget to drop in on my warrior friends blogs and catch what they are up to.

mesothelioma-Out in Paperback The DreamWeaver's Choice- JUSTICEWORLD

- Hi friends, At this time sharing entitled , I have provided a complete article about mesothelioma

Title : mesothelioma-Out in Paperback The DreamWeaver's Choice- JUSTICEWORLD
post : mesothelioma-Out in Paperback The DreamWeaver's Choice- JUSTICEWORLD

My book has arrived, all nice and printed and ready to for sale.  After a few problems on paypal I have it up for sale but heavens knows what has happened on Amazon.

 

I set it up (I think) when young Jack came to help do some changes, but can I remember about it - no, so trying to get back into Amazon on the paperback is impossible.  Also a friend in the States tried to buy it, they accepted the order a month ago but never sent details onwards.  This has been quite a concern so today, if I can get my brain to work, I am going back in and deleting to start again for the Paperback.

 

Liz, my good friend and proof reader, has taken away some 38 books to sell, Chris Knighton will be receiving 250 to start with for the MKMRF to sell at the up and coming events which leaves me the rest to hope people will buy.

 

Many are still old fashioned and like to have a book in front of them rather than the kindle version, although the Kindle Version will ultimately make more cash for the fund as there are no p&p costs associated with it.

 

If you don't like vampires, then think of the characters as assassins for the government or treat the book as a spy thriller, come on please get behind me on this and lets get funds in for the charity.

 

On a sad note have just heard my best friend lost one of her german shepherds during the night, today will be hard for her and her hubby, our dogs are family.  I dread the day when we lose our Lexi, it was 4 years this month since we lost our Tyke and the pain is still in our hearts.?

My book has arrived, all nice and printed and ready to for sale.  After a few problems on paypal I have it up for sale but heavens knows what has happened on Amazon.

 

I set it up (I think) when young Jack came to help do some changes, but can I remember about it - no, so trying to get back into Amazon on the paperback is impossible.  Also a friend in the States tried to buy it, they accepted the order a month ago but never sent details onwards.  This has been quite a concern so today, if I can get my brain to work, I am going back in and deleting to start again for the Paperback.

 

Liz, my good friend and proof reader, has taken away some 38 books to sell, Chris Knighton will be receiving 250 to start with for the MKMRF to sell at the up and coming events which leaves me the rest to hope people will buy.

 

Many are still old fashioned and like to have a book in front of them rather than the kindle version, although the Kindle Version will ultimately make more cash for the fund as there are no p&p costs associated with it.

 

If you don't like vampires, then think of the characters as assassins for the government or treat the book as a spy thriller, come on please get behind me on this and lets get funds in for the charity.

 

On a sad note have just heard my best friend lost one of her german shepherds during the night, today will be hard for her and her hubby, our dogs are family.  I dread the day when we lose our Lexi, it was 4 years this month since we lost our Tyke and the pain is still in our hearts.?

My book has arrived, all nice and printed and ready to for sale.  After a few problems on paypal I have it up for sale but heavens knows what has happened on Amazon.

 

I set it up (I think) when young Jack came to help do some changes, but can I remember about it - no, so trying to get back into Amazon on the paperback is impossible.  Also a friend in the States tried to buy it, they accepted the order a month ago but never sent details onwards.  This has been quite a concern so today, if I can get my brain to work, I am going back in and deleting to start again for the Paperback.

 

Liz, my good friend and proof reader, has taken away some 38 books to sell, Chris Knighton will be receiving 250 to start with for the MKMRF to sell at the up and coming events which leaves me the rest to hope people will buy.

 

Many are still old fashioned and like to have a book in front of them rather than the kindle version, although the Kindle Version will ultimately make more cash for the fund as there are no p&p costs associated with it.

 

If you don't like vampires, then think of the characters as assassins for the government or treat the book as a spy thriller, come on please get behind me on this and lets get funds in for the charity.

 

On a sad note have just heard my best friend lost one of her german shepherds during the night, today will be hard for her and her hubby, our dogs are family.  I dread the day when we lose our Lexi, it was 4 years this month since we lost our Tyke and the pain is still in our hearts.?